In-vivo and Ex-vivo Delivery Systems
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12/05/2025
A new report, prepared by the Partnership for Change, highlights why we need to focus on the fundamental need for all patient communities: good care coordination.
The Partnership for Change is a collaboration of ten leading patient groups brought together and funded by Pfizer. The collective power of the partnership provides a unique opportunity to identify common challenges faced by different patient communities and share these issues with healthcare service providers and government so they can be addressed for the benefit of patients across the UK.
While the NHS is rightly considered one of Britain's greatest achievements, recent reports have shown that the public's satisfaction with the service has reached an all-time low.1 Across each of the ten patient groups, there has been feedback from patients whose frustrations have been borne out of poorly coordinated care, with patients frequently needing to retell their stories, chase up referrals, and advocate for themselves in a convoluted care system. That's why this report calls for patient experience and care coordination to be central to any future plans for the NHS and to be incorporated into the new NHS 10 Year Health Plan.
The 'Connected Care' report makes four recommendations that should be considered within the new NHS 10 Year Health Plan.
This report has been produced by the below Partnership for Change members, with funding from Pfizer:
• Age UK • Alopecia UK • Blood Cancer UK • Fight Bladder Cancer • Genetic Alliance UK • Kidney Care UK • Meningitis Now • The Migraine Trust • The Patients Association • Sickle Cell Society
"Genetic Alliance UK's members have known for a long time that the healthcare system can feel like a maze with no map for people with rare conditions. This report shows how a lack of care coordination doesn’t just delay treatment, it has a toll on mental health, drives inequality, and places an unfair burden on families to navigate the system. By prioritising care coordination, we have a chance to remove that burden and deliver the joined-up, whole-person care every patient deserves, no matter how rare their condition."
Nick Meade, Interim CEO, Genetic Alliance UK
"Migraine can affect every area of life and ensuring those living with the condition experience coordinated care is essential to improving NHS efficiency as well as providing the highest quality care. Understanding where patients feel their care is disjointed is a key part of this. For people with migraine this can include the transition from paediatric to adult care, between primary and secondary care, as well as the interaction between different services."
Robert Music, Chief Executive, The Migraine Trust
"Every day, we hear from patients who are left to shoulder the burden of navigating a fragmented health system. Patients should not be required to continually repeat themselves, chase appointments, and coordinate care across siloed services. It’s exhausting, disheartening, and ultimately harmful. This report makes it clear that better coordination isn’t a ‘nice to have’, it’s essential to improving outcomes, reducing inequalities, and restoring confidence in the NHS. By placing coordination at the centre of reform, we can help build a health service that truly meets the needs of every patient."
Rachel Power, Chief Executive, The Patients Association
"This report shines a light on the importance of good coordination of care, and why this is a key priority for the Partnership for Change, a collaboration of 10 patient organisations and Pfizer. We believe that the recommendations made are clear and actionable and must be considered within the new 10 Year Health Plan for the NHS, to help deliver improved levels of care for patients regardless of their health condition."
Berkeley Phillips, Country Medical Director, Pfizer UK
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