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Patient Organisation funding and support

Transparency is at the heart of our approach when working with patient organisations, and the interests of patients always come first.

In providing funding or working with patient organisations, Pfizer’s guiding principle is to ensure that the organisation’s independence is never compromised. If this is put at risk, then credibility starts to be lost on both sides and this helps no one. We feel passionately that relationships with patient organisations are both valuable and essential, and by operating with a high degree of transparency, we can be confident and proud of the relationships we have developed.

As a member of The Association of the British Pharmaceutical Industry (ABPI), we must declare a list of patient organisations to which we provide financial support and/or significant non-financial support, including a description of the support and its monetary value. For significant non-financial support which cannot be assigned a meaningful monetary value, we are required to describe clearly the value that the organisation receives.

We are also required to provide a list of patient organisations we have engaged to provide significant contracted services, including a description of the services provided.

In addition, we disclose the payment of expenses relating to accommodation and travel (both in the UK and abroad) incurred by patient organisations in the course of their interaction with us. Our disclosure of expenses payments for patient organisations includes both out-of-pocket expenses reimbursed to patient groups, and expenses paid in advance by Pfizer.

We are always mindful of the potential to create an over-dependency on any funding we provide. That is why, wherever possible, we report the percentage of each patient organisation’s revenue that our funding makes up.

However, there are times when this percentage may be higher than average. This might be due to a difficult fundraising climate, because an organisation is new or small in size, or perhaps experienced some unforeseen circumstances that impacted on its ability to attract income. Where this is the case, we actively encourage the organisation to seek and secure other sources of sustainable funding in line with the guidelines outlined in the ABPI Code of Practice.

 

Patient organisation disclosure reports

 

2018
Patient Organisation Name
(Charity Number)
Total amount Pfizer gave in donations as % of total income in Patient Organisation's last reported financial year Type of activity/support Short description of activity Funding received by Patient Organisation for activity £ Total of any expenses paid to Patient Organisation for activity £ Total funding received by charity Total expenses received by charity
ACTION DUCHENNE (1101971)

Action Duchenne works across the UK to improve the lives of those affected by Duchenne and Becker Muscular Dystrophy, whilst supporting innovative research into a cure and effective new medicines.

0.97% Charitable donation Charitable donation to support 'Action Duchenne International Conference 2018', an educational conference focused on the science and care of Becker's and Duchenne muscular dystrophy. £7,500.00 - £7,500.00 £0.00
ALEX'S WISH (1148845)

Alex's Wish is a charity set-up to eradicate Duchenne Muscular Dystrophy, an aggressive form of Muscular Dystrophy. The Charity was set-up by Emma and Andy Hallam (parents to Alex) in late 2012 to help raise vital funds to help bring about new treatments and ultimately a cure for this devastating condition.

0.05% Charitable donation Charitable donation to Alex's Wish to support the charity's general work on Duchenne Muscular Dystrophy. £100.00 - £100.00 £0.00
ANTICOAGULATION EUROPE (1090250)

AntiCoagulation Europe is a UK registered charity founded in the year 2000. AntiCoagulation Europe works with patients, health professionals, NHS trusts, industry, governments, other charities and patient groups and a wide range of other organisations. Its aims are: • the prevention of thrombosis; • the provision of information, education and support; • the promotion of independence - supporting people to take an active part in their own healthcare.

15.96% Consultancy and service fees The BMS-Pfizer Alliance commissioned the Arrhythmia Alliance, Atrial Fibrillation Association and AntiCoagulation Europe to collaborate on delivery of a website campaign that seeks to encourage action in improving the treatment and management of the prevention of AF related stroke. The campaign will be wide-ranging, using a number of different platforms and tactics, in order to engage: health professionals; patients; politicians and healthcare policy makers; media; and commissioners. £1,750.00 - £33,517.50 £14.60
Consultancy and service fees The BMS-Pfizer Alliance commissioned the Arrhythmia Alliance, Atrial Fibrillation Association and AntiCoagulation Europe to collaborate on delivery of a website campaign that seeks to encourage action in improving the treatment and management of the prevention of AF related stroke. The campaign will be wide-ranging, using a number of different platforms and tactics, in order to engage: health professionals; patients; politicians and healthcare policy makers; media; and commissioners. £1,750.00 -
Consultancy and service fees The BMS-Pfizer Alliance commissioned the Arrhythmia Alliance, Atrial Fibrillation Association and AntiCoagulation Europe to collaborate on delivery of a website campaign that seeks to encourage action in improving the treatment and management of the prevention of AF related stroke. The campaign will be wide-ranging, using a number of different platforms and tactics, in order to engage: health professionals; patients; politicians and healthcare policy makers; media; and commissioners. £1,750.00 -
Consultancy and service fees The BMS-Pfizer Alliance commissioned the Arrhythmia Alliance, Atrial Fibrillation Association and AntiCoagulation Europe to collaborate on delivery of a website campaign that seeks to encourage action in improving the treatment and management of the prevention of AF related stroke. The campaign will be wide-ranging, using a number of different platforms and tactics, in order to engage: health professionals; patients; politicians and healthcare policy makers; media; and commissioners. £1,750.00 -
Consultancy and service fees The BMS-Pfizer Alliance commissioned the Arrhythmia Alliance, Atrial Fibrillation Association and AntiCoagulation Europe to collaborate on delivery of a website campaign that seeks to encourage action in improving the treatment and management of the prevention of AF related stroke. The campaign will be wide-ranging, using a number of different platforms and tactics, in order to engage: health professionals; patients; politicians and healthcare policy makers; media; and commissioners. £1,750.00 -
Consultancy and service fees BMS and Pfizer paid AntiCoagulation Europe to provide a patient participant for the Pfizer organised advisory board entitled the 'Independent Grants for Learning and Change - Improving Care of Patients with Atrial Fibrillation in Order to Reduce Stroke Risk.' £450.00 -
Consultancy and service fees BMS and Pfizer paid a consultancy fee to Anti Coagulation Europe to provide a staff member to help better understand patient perspective when assessing the IPCA MEGS applications. £450.00 -
Consultancy and service fees Pfizer and BMS paid a fee for participation in a film to be shown at an internal company event £360.00 -
Consultancy and service fees Pfizer and BMS paid to Identify and arrange a patient speaker for an internal Global Patient Week event. £382.50 -
Charitable donation Pfizer and BMS provided a grant to support the organization's project: "Survey of Hospital Trusts and Clinical Commissioning Groups and Assessment of VTE cost breakdown and production of a report" £7,500.00 -
Charitable donation Pfizer and BMS provided indirect funding through Four Comms for follow up activities related to the "Secondary Prevention in VIE: Developing Optimal Standards of Care for the Prevention of Recurrent VTE" meeting. Activity to include publication of the consensus statements and engagement programme £6,250.00 -
Charitable donation Pfizer and BMS provided indirect funding through Four Comms for the meeting: "Secondary Prevention in VIE: Developing Optimal Standards of Care for the Prevention of Recurrent VTE" and Post meeting write up. £9,375.00 -
Related expenses Related travel expenses paid to AntiCoagulation UK to reimburse a patient who participated in a BMS / Pfizer organised meeting. - £14.60
ARRYTHMIA ALLIANCE (1107496)

Arrhythmia Alliance is a coalition of charities, patient groups, patients, carers, medical groups and allied professionals. These groups remain independent, however, working together under the Arrhythmia Alliance umbrella to promote timely and effective diagnosis and treatment of arrhythmias

0.17% Corporate sponsorship BMS and Pfizer supported an educational/scientific meeting entitled 'Cardiac Update Meeting' In return, Arrhythmia Alliance allowed Pfizer to set up and attend a stand at the meeting. £375.00 - £1,625.00 £0.00
Consultancy and service fees The BMS-Pfizer Alliance commissioned the Arrhythmia Alliance, Atrial Fibrillation Association and AntiCoagulation Europe to collaborate on delivery of a website campaign that seeks to encourage action in improving the treatment and management of the prevention of AF related stroke. The campaign will be wide-ranging, using a number of different platforms and tactics, in order to engage: health professionals; patients; politicians and healthcare policy makers; media; and commissioners. £1,250.00 -
ARTHRITIS RESEARCH UK (2077110)

Arthritis Research UK funds scientific and medical research into all types of arthritis and musculoskeletal conditions. It is working to take the pain away for people living with all forms of arthritis and helping them to remain active. Arthritis Research UK contribute to this through funding high quality research, providing information and campaigning.

0.004% Consultancy and service fees Pfizer paid for a staff member from Arthritis Research UK to participate in the Pfizer organised workshop and discussions at the 'Patients First European R&D workshop' over a two day period. £1,200.00 - £1,200.00 £0.00
ASH WALES (1120834)

Action on Smoking and Health (ASH) Wales is the leading voluntary organisation in Wales tackling tobacco use. Their main aim is to achieve a reduction in and eventual elimination of the health problems associated with tobacco use.

2.5% Charitable donation Charitable donation provided to ASH Wales for the project entitled 'ASH Wales GP Smoking Cessation Partnership.' £9,750.00 - £9,750.00 £0.00
ATRIAL FIBRILLATION ASSOCIATION (1122442)

The Atrial Fibrillation Association is an international charity which provides information, support and access to established, new or innovative treatments for atrial fibrillation (AF).

11.13% Charitable donation Pfizer and BMS provided a Charitable donation to Atrial Fibrillation Association to deliver a project entitled 'Northern Ireland AF Improvement Workshop.' £6,750.00 - £19,545.00 £0.00
Consultancy and service fees The BMS-Pfizer Alliance commissioned the Arrhythmia Alliance, Atrial Fibrillation Association and AntiCoagulation Europe to collaborate on delivery of a website campaign that seeks to encourage action in improving the treatment and management of the prevention of AF related stroke. The campaign will be wide-ranging, using a number of different platforms and tactics, in order to engage: health professionals; patients; politicians and healthcare policy makers; media; and commissioners. £2,000.00 -
Consultancy and service fees The BMS-Pfizer Alliance commissioned the Arrhythmia Alliance, Atrial Fibrillation Association and AntiCoagulation Europe to collaborate on delivery of a website campaign that seeks to encourage action in improving the treatment and management of the prevention of AF related stroke. The campaign will be wide-ranging, using a number of different platforms and tactics, in order to engage: health professionals; patients; politicians and healthcare policy makers; media; and commissioners. £1,000.00 -
Consultancy and service fees The BMS-Pfizer Alliance commissioned the Arrhythmia Alliance, Atrial Fibrillation Association and AntiCoagulation Europe to collaborate on delivery of a website campaign that seeks to encourage action in improving the treatment and management of the prevention of AF related stroke. The campaign will be wide-ranging, using a number of different platforms and tactics, in order to engage: health professionals; patients; politicians and healthcare policy makers; media; and commissioners. £1,000.00 -
Consultancy and service fees Media Activity during Global Atrial Fibrillation Awareness week to raise awareness of AF, the AFTurnaround website and the AFTurnaround patient survey. The AF Turnaround Campaign was developed by a group of expert healthcare professionals and patient advocates (including AFA) to support change in order to prevent AF-related strokes, in line with NICE Clinical Guideline 180 on management of AF. A patient survey was launched to gather the patient's perspective on the management of their condition. £420.00 -
Charitable donation Pfizer and BMS provided a financial contribution to support the organisation's mission and objectives, which focus on raising awareness of atrial fibrillation by providing information and support materials for patients and medical professionals involved in detecting, diagnosing and managing atrial fibrillation. £7,500.00 -
Corporate sponsorship Pfizer and BMS provided a financial sponsorship of the 'Know Your Pulse campaign', which invites members of the public to have their pulses checked, increase awareness of AF and the importance of pulse rhythm. £875.00 -
BLOODWISE (216032)

Bloodwise is a UK charity solely dedicated to research into blood cancers, including leukaemias, lymphoma and myeloma

0.01% Consultancy and service fees Consultancy fee to Bloodwise who were commissioned to review Pfizer medicine Patient and Caregiver guidance materials developed by Pfizer. £1,560.00 - £1,560.00 £0.00
BREAST CANCER CARE (1017658)

Breast Cancer Care provides information, practical assistance and emotional support for anyone affected by breast cancer.

0.93% Charitable donation Charitable donation to Breast Cancer Care to support a project called the 'Secondary Breast Cancer Nurse Support Service.' £60,601.00 - £149,801.00 £0.00
Charitable donation Charitable donation to Breast Cancer Care to support a project called the 'Younger Women Together with Secondary' residential event. £28,700.00 -
Charitable donation Charitable donation to Breast Cancer Care to support a project called the 'Living with Secondary Breast Cancer Service.' £60,500.00 -
BRITISH LUNG FOUNDATION (326730)

The British Lung Foundation aims to prevent lung disease by campaigning for positive change in the UK's lung health, raise awareness about lung disease, the dangers that cause it and offer advice on how to look after your lungs.

0.40% Charitable donation Charitable donation provided to British Lung Foundation to support the Respiratory Taskforce in 2018 across all lung conditions with a particular focus on those that are most prevalent (e.g. COPD and respiratory cancers) and most costly, supporting the development of solutions needed for people of all ages living with lung conditions and address 5 work streams: prevention, diagnosis, treatment, quality of life and end of life care. £35,000.00 - £38,660.00 £0.00
Consultancy and service fees Pfizer paid British Lung Foundation to provide a staff member to offer an expert opinion and advice on an asset produced to support GP practices to implement smoking cessation. £400.00 -
Consultancy and service fees Pfizer paid for a staff member from The British Lung Foundation to be a panel member, reviewing and judging the Medical Educational Goods and Services applications for the 2018 Improving Patient Care in Chronic Obstructive Pulmonary Disease (COPD), and Improving Patient Care in Tobacco Dependency grant programmes. £2,760.00 -
Corporate sponsorship Pfizer supported an educational/scientific meeting entitled 'BLF Professionals Study Day Gwynedd.' In return, The British Lung Foundation allowed Pfizer to set up and attend a stand at the meeting. £500.00 -
CANCER FOCUS NORTHERN IRELAND (NIC101307)

Cancer Focus Northern Ireland provides help to individuals and families affected by cancer, promotes prevention and awareness, and funds cancer research.

0.02% Related expenses Related travel expenses paid to Cancer Focus NI to reimburse the speaker who presented at a Pfizer Organised 'Train the Trainer' meeting on smoking cessation. - £120.08 £700.00 £120.08
Consultancy and service fees Pfizer paid a consultancy fee to Cancer Focus NI for them to provide an expert speaker to present at the Pfizer Organised 'Train the Trainer' meeting on smoking cessation. £350.00 -
Consultancy and service fees Pfizer paid a consultancy fee to Cancer Focus NI for them to provide an expert speaker to present at the Pfizer Organised 'Train the Trainer' meeting on smoking cessation. £350.00 -
CANCER RESEARCH UK (1089464)

Cancer Research UK is a charity that carries out research to improve understanding of cancer and find out how to prevent, diagnose and treat different kinds of cancer, working to improve the lives of all cancer patients and helping people to understand cancer, the progress we are making and the choices that each person can make.

0.00012% Charitable donation Charitable donation paid to Cancer Research UK after nomination from a group of Internal Pfizer colleagues after securing the 2017 R&D Quality Award. £760.86 - £760.86 £0.00
CANCER 52 (1174569)

Cancer 52 represents 90+ rare and uncommon cancer charities. Its mission is to provide a strong, unified voice for rarer and less common cancer organisations by representing, speaking, informing, sharing and involving its members in its work to end the disadvantages people with rare and less common cancers face compared with the four most common cancers.

17.25% Charitable donation Charitable donation to Cancer52 which will support their secretariat activity to enable the charity to continue in its ambition to empower, engage and share on the issues faced by those with rare and less common cancers. £9,000.00 - £12,900.00 £0.00
Charitable donation Charitable donation to Cancer52 to support the production of their 'Charter for Rare and Less Common Cancers', which aims to ensure the voice of people with rare and less common cancers, is heard at the highest levels of Government. £3,900.00 -
CHILD GROWTH FOUNDATION (274325)

The Child Growth Foundation is a UK's charity relating to children's growth. The charity supports parents with a child who has a diagnosed or suspected growth problem and people who have a growth problem and their families. It also works with medical professionals with an interest in this area of health.

Not available due to small company exemption. Charitable donation Charitable donation to the Child Growth Foundation to support a project on the production and distribution of 800 copies of their newsletter to its membership. £5,750.00 - £5,750.00 £121.50
Related expenses Related travel expenses paid to the Child Growth Foundation to reimburse the staff member who attended the Pfizer organised 'PAG Summit Meeting.' - £121.50
CHRONIC MYELOID LEUKAEMIA (CML) SUPPORT GROUP (1114037)

The CML Support Group is a UK charity focusing exclusively on people diagnosed with Ph+ Chronic Myeloid Leukaemia. The CML Support Group was set up in order to reach out to all patients diagnosed with CML and to provide support, advice and information to them and their families.

19.72% Charitable donation Charitable donation to the Chronic Myeloid Leukaemia Support Group to support a project entitled "Taking control: making your support group your own" an ongoing outreach activity to patients and health professionals. £7,500.00 - £7,500.00 £0.00
CONFEDERATION OF MENINGITIS ORGANISATIONS (CoMO) (1167023)

The Confederation of Meningitis Organisations Ltd (CoMO) is an international member organisation working to reduce the incidence and impact of meningitis worldwide.

21.71% Consultancy and service fees Pfizer paid the Confederation of Meningitis to provide a staff member to present an insight of the CoMO's Meningitis campaign at the "2018 IDM Virtual Meeting" to utilise the tools, networks and support to demonstrate the impact that meningitis has on a personal and global level. £398.91 - £42,393.13 £0.00
Charitable donation Charitable donation to support Confederation of Meningitis Organisations towards the costs of administering the 'Event in the European Parliament on the role of vaccines in the fight against antimicrobial resistance.' £8,883.55 -
Charitable donation Charitable donation to the Confederation of Meningitis Organisations to support the project entitled '2018 Global Conference.' £10,101.00 -
Charitable donation Charitable donation to the Confederation of Meningitis Organisations to support the program entitled 'Advancing Meningitis Awareness and Prevention in Asia Pacific: Understanding the Policy Barriers.' £23,009.67 -
DUCHENNE UK (1147094)

Duchenne UK's vision is to find and accelerate treatments and a cure for Duchenne Muscular Dystrophy (DMD). They aim to eradicate DMD in 10 years.

1.2% Charitable donation Charitable donation to Duchenne UK to support 'Project Hercules' in developing a platform on which the quality of life metric and questionnaire for patients with DMD will be housed. £47,183.93 - £47,183.93 £0.00
ECZEMA OUTREACH SUPPORT (SCO42392)

Eczema Outreach Support offer support services for families of children affected by eczema in the UK. Support is provided in many ways: 1-1 help with practical tips such as setting up a healthcare plan with schools, emotional support, family events, children and teen virtual clubs, workshops in schools and eczema sessions with health visitors

15.25% MEGS Pfizer provided Eczema Outreach Support with an Independent Grant for Learning & Change on Atopic Dermatitis with the aim to educate health professionals (Dermatologists, General Practitioners and Nurse Practitioners) on the burden of atopic dermatitis. £30,645.41 - £32,145.41 £0.00
Consultancy and service fees Pfizer paid for an Eczema Outreach Support staff member to participate in an advisory board on the subject of Atopic Dermatitis. £500.00 -
Consultancy and service fees Pfizer paid for an Eczema Outreach Support staff member to participate in an advisory board on the subject of Atopic Dermatitis. £1,000.00 -
ENCEPHALITIS SOCIETY (1087843)

The Encephalitis Society is a charity which aims to improve the quality of life of all people affected directly and indirectly by Encephalitis by offering patient support, information and supporting research.

2.28% Charitable donation Charitable donation to Encephalitis Society to deliver a project entitled 'World Encephalitis Day.' £12,000.00 - £12,000.00 £0.00
EUROPACOLON LTD (Company Number 05314195)

EuropaColon aims to unite patients, caregivers, health professionals, politicians, the media and the public in the fight against digestive cancers. The organisation works with 43 groups in 32 European countries and has been recognised as the voice of colorectal cancer patients in Europe.

Not available due to small company exemption. Business Donation Business donation to support EuropaColon Ltd for the 'EuropaColon 2018 Masterclass and the EuropaColon Heatmap.' £18,730.80 - £27,500.80 £0.00
Corporate sponsorship Corporate sponsorship to EuropaColon Ltd in return for the development of a EuropaColon biosimilars positioning paper. £8,000.00 -
Consultancy and service fees Pfizer paid a consultancy fee to EuropaColon Ltd to provide an expert speaker to prepare and deliver a presentation at the Pfizer organised meeting 'Cancer Action Media Event' for health professionals. £770.00 -
EUROPEAN GAUCHER ALLIANCE (Company Number 06653373)

The EGA is an umbrella organisation that supports and represents national Gaucher associations on a pan-European level. It has provided patient-focused guidance, support and advice to industry, health professionals, governments, the EU, developing patient organisations, scientists and physicians and all other stakeholders in the Gaucher community.

Not available due to small company exemption. Charitable donation Charitable donation to the European Gaucher Alliance to support the project entitled '2018 Corporate Partnership.' £45,000.00 - £102,400.00 £0.00
Corporate sponsorship Pfizer supported European Gaucher Alliance to deliver 'International Gaucher Day 2018.' In return, Pfizer received sponsorship rights. £57,40.00 -
EUROPEAN PARKINSONS DISEASE ASSOCIATION (1163211)

The European Parkinson's Disease Association (EPDA) is a European Parkinson's umbrella organisation. They have been championing and working with the global Parkinson's community for 27 years. They provide information and resources to all Parkinson's stakeholders, raise awareness of the disease's complexities and impact, and advocate for concrete policy change that benefits the Parkinson's community.

3.34% Corporate sponsorship Pfizer supported the European Parkinsons' Disease Association in delivering their work. In return, Pfizer received various sponsorship rights including becoming a Gold Corporate Partner. £21,085.48 - £21,085.48 £0.00
GENETIC ALLIANCE UK (1114195)

Genetic Alliance UK aims to improve the lives of people affected by genetic conditions by ensuring that high quality services and information are available to all that need them.

3.29% Corporate sponsorship Retrospective Corporate sponsorship to Genetic Alliance UK in return for membership of Rare Disease UK, an initiative of Genetic Alliance UK for 2017. £10,000.00 - £25,000.00 £0.00
MEGS Financial support provided to Genetic Alliance UK in the form of a medical educational grant to support the development of a multi-stakeholder vision for the future of access to rare disease medicines in the UK, and to deliver the vision to decision-makers/influencers by way of a campaign. £15,000.00 -
GLOBAL LUNG CANCER COALLITION (GLCC) c/o Roy Castle Lung Cancer Foundation (1046854)

GLCC comprises 37 non-government patient organisations from across the world. GLCC serves as the international voice of lung cancer patients and is committed to improving disease outcomes for all.

Not Applicable- Umbrella Organisation Corporate sponsorship Pfizer supported the Global Lung Cancer Coalition in delivering their work. In return, Pfizer received various Gold Corporate Partnership sponsorship rights. £30,000.00 - £30,000.00 £0.00
HAEMOPHILIA SCOTLAND (SCO44298)

Haemophilia Scotland is a Scottish charity for people affected by bleeding disorders in Scotland. They provide independent information, direct support, and opportunities for affected people to support each other. By working closely with the Scottish Haemophilia Centres, NHS Scotland, and the Scottish Government they represent the interests of people with bleeding disorders.

6.21% Charitable donation Charitable donation to Haemophilia Scotland to support a meeting on World Federation of Haemophilia entitled the 'Haemophilia Scotland AGM.' £7,500.00 - £7,500.00 £0.00
HAEMOPHILIA SOCIETY (288260)

Haemophilia Society is a UK-wide charity for everyone affected by a bleeding disorder; a community of individuals and families, health professionals and supporters. For more than 60 years the Society has campaigned for better treatment, been a source of practical information and support, and enabled people living with long term conditions to lead fulfilling lives, make informed choices about their treatment, care and support and inspire others to do the same.

8.24% Charitable donation Charitable donation to the Haemophilia Society to support the institute to deliver a project on developing a package to support their ageing member's needs. £20,000.00 - £56,215.60 £0.00
Charitable donation Charitable donation to the Haemophilia Society to support the project called 'Newly Diagnosed Weekends', which offers children who are newly diagnosed with bleeding disorders and their parents the opportunity to gain support from professionals, understand their condition and share experiences with other patients with the same condition. £15,000.00 -
Charitable donation Charitable donation to the Haemophilia Society to support the project called 'Talking Red' which supports women with bleeding disorders and promotes a better understanding of what it means to live with a bleeding disorder. £10,000.00 -
Charitable donation Charitable donation to the Haemophilia Society to enable the Ageing Project which supports older members affected by a genetic bleeding disorder with professional support and a better understanding of living with a genetic bleeding disorder. £10,000.00 -
Consultancy and service fees Pfizer paid a consultancy fee to the Haemophilia Society to support set up and playtesting, to recruit patients to play test a board game developed for young people with Haemophilia and their families. £1,215.60 -
INTERNATIONAL ALLIANCE OF PATIENT ORGANISATIONS (IAPO) (1155577)

IAPO is a global alliance, committed to improving the lives of patients from all around the world. IAPO nurtures relationships with members, partners and all those involved in healthcare, and builds dialogue with decision-makers around the world to promote patient-centred healthcare.

22.24% Corporate sponsorship Pfizer supported the International Alliance of Patient Organisations in delivering their work. In return, Pfizer received various sponsorship rights including becoming a Gold Healthcare Industry Partner. £35,554.30 - £109,271.39 £0.00
Corporate sponsorship Pfizer supported International Alliance of Patient Organisation to deliver the 'Gene Therapy Information & Education Project'. In return, Pfizer received sponsorship rights. £7,152.56 -
Corporate sponsorship Pfizer supported International Alliance of Patient Organisation to deliver the '8th Global Patients Congress'. In return, Pfizer received sponsorship rights. £37,461.60 -
Corporate sponsorship Pfizer supported International Alliance of Patient Organisation to deliver the '2018 Gene Therapy Project'. In return, Pfizer received sponsorship rights. £29,102.93 -
INTERNATIONAL BRAIN TUMOR ALLIANCE (IBTA) (Company Number 6031485)

IBTA is a global network founded in 2005 as a dynamic worldwide community for brain tumour organisations and others involved in the field of neuro-oncology. IBTA brings together experience and expertise from all over the world with the aim of enhancing the well-being and quality of life of brain tumour patients and their families. Their mission is to advocate for the best treatment, information, support and quality of life for brain tumour patients, offering them, their families and carers hope - wherever they live in the world.

Not available due to small company exemption. Charitable donation Charitable donation to the International Brain Tumour Alliance for the '2018 Work Programme.' £11,000.00 - £11,000.00 £0.00
INTERNATIONAL PATIENT ORGANISATION FOR IMMUNODEFICENCIES (IPOPI) (1058005)

IPOPI is established to promote the efficient and effective application of resources for the relief of people with primary immunodeficiencies by national patient organisations.

4.75% Corporate sponsorship Corporate sponsorship provided to the International Patient Organisations for Primary Immunodeficiencies in exchange for becoming a 2018 Corporate Partner. £45,285.12 - £45,285.12 £0.00
Irish Heart Foundation (Charities Regulator Number- 20008376)

The Irish Heart Foundation's mission is to affect positive change in the lifestyles of Irish people, to achieve better outcomes for those affected by heart disease and stroke and to challenge when the health of our nation is put at risk. They empower people to live longer, healthier lives.

0.15% Charitable donation The Pfizer-BMS Alliance provided a grant to support the Training in Cardiovascular Medicine's fellowship program which provides the sub specialty training of a fellow in a centre of excellence overseas, €17,500.00 - €17,500.00 €0.00
KIDNEY CANCER SUPPORT NETWORK (1164238)

Kidney Cancer Support Network (KCSN) is a UK wide patient-led support network that advocates on behalf of the kidney cancer community and seeks to improve the lives of kidney cancer patients, their carers and family members.

20.4% Charitable donation Charitable donation to Kidney Cancer Support Network to support a project on raising awareness on kidney cancer entitled 'World Kidney Cancer Day 2018.' £7,675.00 - £17,675.00 £0.00
Charitable donation Charitable donation to Kidney Cancer Support Network for their project to develop a portfolio of support materials for patients with kidney cancer. £10,000.00 -
LEUKAEMIA CARE (259483)

Leukaemia Care exists to provide vital care and support to all those whose lives have been affected by leukaemia, lymphoma, myeloma and the allied blood disorders

0.14% Consultancy and service fees Pfizer paid a consultancy fee to Leukaemia Care for them to provide an expert speaker to present on the subject of 'Living with Leukaemia: a patient's perspective' at a Pfizer Organised Meeting for health professionals. £150.00 - £1,710.00 £58.95
Related expenses Related travel expenses paid to Leukaemia Care to reimburse the speaker who presented at the Pfizer organised meetings. - £58.95
Consultancy and service fees Pfizer paid for consultancy services. Leukaemia Care were asked to review Inotuzumab Patient and Caregiver guidance materials developed by Pfizer. £1,560.00 -
MENINGITIS NOW (803016)

Meningitis Now, born of a merger in 2013 between the Meningitis Trust and Meningitis UK, is an organisation focused on saving lives and rebuilding futures. It funds research into prevention and impact of the disease. It raises life-saving awareness through campaigns, digital and print materials. It provides ongoing practical and emotional support to families and individuals through a unique range of free services, including a helpline, financial support grants, counselling, art therapy, home visits, family days and community support.

0.75% Consultancy and service fees Pfizer paid Meningitis Now to provide a staff member to prepare and deliver a presentation entitled 'A Life For a Cure' at the event entitled 'Discover! The World of Vaccines' £408.00 - £25,802.26 £25.59
Charitable donation Pfizer provided a Charitable donation to support Meningitis Now's campaign entitled 'Adults Get It Too'. £25,000.00 -
Consultancy and service fees Pfizer paid Meningitis Now to provide a staff member to utilise expertise in offering support, funding research and raising awareness against Meningitis to provide first hand insight into the effect of Meningitis B against sufferers and their family at the meeting entitled "2018 IDM Virtual Meeting" £394.26 -
Related expenses Related travel expenses paid to Meningitis Now to reimburse the speaker who presented at the Pfizer organised meeting entitled '2018 IDM Virtual Meeting.' - £25.59
MENINGITIS RESEARCH FOUNDATION (1091105)

Meningitis Research Foundation funds research to prevent meningitis and septicaemia, and to improve survival rates and outcomes. The charity carries out an information and educational programme for the public and health professionals to reduce death and disability, and offers befriending support and membership of the charity to people affected.

4.23% Charitable donation Charitable donation to support Meningitis Research Foundation's project 'Patient Group Support - Piloting New Approaches.' £15,000.00 - £124,689.15 £37.76
Charitable donation Charitable donation to support the Meningitis Research Foundation's project on Global Meningococcal Genome Library. £25,000.00 -
Charitable donation Charitable donation to support the Meningitis Research Foundation's project on 'The Meningitis Impact Portal.' £30,000.00 -
Charitable donation Charitable donation to the Meningitis Research Foundation to support the organisation and the civil society capacity building. £30,000.00 -
Charitable donation Charitable donation to Meningitis Research Foundation's to support awareness raising activities on the two groups at highest risk of meningitis - adolescents and young children. £10,000.00 -
Consultancy and service fees Pfizer paid a consultancy fee to Meningitis Research Foundation for them to provide an expert speaker to present 'Best Practices in Advocacy' at a Pfizer Organised Meeting entitled 'FIP Vaccination Advocacy Summit' £545.02 -
Consultancy and service fees Pfizer paid Meningitis Research Foundation for the provision of a staff member to provide advice at the 'Advancing Adolescent Health Fall Forum 2018' regarding the development of a communications plan to disseminate health, wellness and vaccination messages. £354.94 -
Consultancy and service fees Pfizer paid for a Meningitis Research Foundation staff member to participate in an advisory board on the subject of Meningococcal Disease £5,188.80 -
Consultancy and service fees Pfizer paid a consultancy fee to Meningitis Research Foundation for them to provide an expert speaker to prepare and deliver a presentation at the Pfizer organised meetings '2018 IDM Public Affairs Meeting: Our Customers Perspective.' £450.00 -
Corporate sponsorship Pfizer supported Meningitis Research Foundation to deliver 'Meningitis Research Foundation- Meningitis in 2030'. In return, Pfizer received sponsorship rights including attendance at a summit and participation on a panel. £8,150.39 -
Related expenses Related travel expenses paid to Meningitis Research Foundation to reimburse the speaker who presented at the Pfizer organised meetings. - £37.76
NATIONAL RHEUMATOID ARTHRITIS SOCIETY (1134859)

The National Rheumatoid Arthritis Society (NRAS) provides support and information for people living with Rheumatoid Arthritis and Juvenile Idiopathic Arthritis, their families, friends and carers, and health professionals who care for them.

0.1% Consultancy and service fees Pfizer paid for a staff member from National Rheumatology Arthritis Society to attend and participate in the Pfizer organised meeting 'Pfizer Council for progress- a better way for RA' over a two day period to help Pfizer develop an long-term vision into how we can support the improvement of care and treatment for the people living with Rheumatoid Arthritis. £783.88 - £949.70 £0.00
Consultancy and service fees Pfizer paid for a staff member from National Rheumatology Arthritis Society to attend and participate in the Pfizer organised meeting 'Pfizer Council for progress- a better way for RA' over a two-day period to help Pfizer develop an long-term vision into how we can support the improvement of care and treatment for the people living with Rheumatoid Arthritis. £165.82 -
PATIENT VIEW LTD (Company Number- 3944382)

PatientView is a UK-based research, publishing, and consultancy group, created out of a belief that the views of patients should be considered in all important healthcare decisions. Formed in response to the emerging powerful new global patient movement, PatientView has worked to build bridges worldwide with the health NGOs that comprise the patient movement—to help define and support one of the most important factors changing healthcare in the 21st century.

Not available due to small company exemption. Consultancy and service fees Pfizer paid Patientview Ltd for the provision of a global licence PatientView 2017 'Corporate Reputation of Pharma' series of reports, published in PDF during the course of 2018, and any other data requested by Pfizer, related to the corporate reputation analyses. The global licence allows Pfizer to circulate these 2017 'Corporate Reputation of Pharma' reports to ALL full-time employees of Pfizer worldwide. £20,000.00 - £35,000.00 £0.00
Consultancy and service fees Pfizer paid Patientview Ltd for the provision of a global licence PatientView 2017 'Corporate Reputation of Pharma' series of reports, published in PDF during 2018, and any other data requested by Pfizer, related to the corporate reputation analyses. The global licence allows Pfizer to circulate these 2017 'Corporate Reputation of Pharma' reports to ALL full-time employees of Pfizer worldwide. £15,000.00 -
REFORM RESEARCH TRUST (1103739)

Reform Research Trust is established as a Westminster think tank for public service reform. They are dedicated to making our public services better and smarter. By improving policy, they hope to play their part in achieving better public services for all and delivering value for money in the UK.

1.1% Corporate sponsorship Pfizer supported the Reform Research Trust in delivering their work. In return, Pfizer received various sponsorship rights including becoming a Corporate Partner. £10,000.00 - £10,000.00 £0.00
REVERSE RETT (1136809)

Reverse Rett is a UK medical research charity working to speed treatments and a cure for Rett Syndrome. Rett Syndrome has already been reversed in the lab. We work to drive these promising lab developments into tangible treatments and a cure for people living with Rett Syndrome today.

0.1% Charitable donation Charitable donation to support the charity Reverse Rett. Reverse Rett funded privately via the 401 project is dedicated to raising the funds to help research of MECP2 Duplication Syndrome. £1,000.00 - £1,000.00 £0.00
ROYAL NATIONAL INSTITUTE OF BLIND PEOPLE (RNIB) (1156629)

RNIB supports blind and partially sighted people. They offer practical and emotional support to those that need them. RNIB campaign to prevent avoidable sight loss, influence government law and policy, and empower blind and partially sighted people to advocate for an inclusive society for all.

<1% Consultancy and service fees Pfizer commissioned RNIB to produce a Patient Information Leaflet. £160.00 - £160.00 £0.00
ROY CASTLE LUNG CANCER FOUNDATION (1046854)

The Roy Castle Lung Cancer Foundation is a charity in the UK wholly dedicated to defeating lung cancer, the biggest cancer killer in the world.

0.02% Consultancy and service fees Consultancy services to Roy Castle Lung Cancer Foundation were asked to provide advice regarding Agenda Focus, Workshop Sessions and Outcomes for action at the 'Lung Cancer Advocacy Meeting.' £754.19 - £754.19 £0.00
SICKLE CELL SOCIETY (1046631)

The Sickle Cell Society is a national charity in the UK that supports and represents people affected by sickle cell disease to improve their overall quality of life.

0.02% Related expenses Related travel expenses paid to Sickle Cell Society to reimburse a member who attended the 'PAG Summit' Pfizer organised meeting. - £144.90 £0.00 £144.90
SOLVING KIDS CANCER EUROPE (1135601)

Solving Kids' Cancer Europe supports children and families affected by neuroblastoma, a rare form of paediatric cancer. They provide a range of specialist support services to families affected by neuroblastoma designed to equip them with the knowledge and resources they need to fight this disease. They also fund the ground-breaking neuroblastoma research that is essential to push treatment forward and improve outcomes for children.

0.34% Charitable donation Charitable donation to Solving Kids' Cancer to support a meeting entitled 'Neuroblastoma Parent Education Conference 2018' on improving treatment and quality of life of paediatric cancer. £7,000.00 - £7,000.00 £0.00
STROKE ASSOCIATION (211015)

The Stroke Association is a UK-wide charity solely concerned with combating stroke in people of all ages. It funds research into prevention, treatment and better methods of rehabilitation, and helps stroke patients and their families directly through its Life After Stroke Services. The Stroke Association also campaigns, educates and informs to increase knowledge of stroke at all levels of society, and acts as a voice for everyone affected by stroke.

0.04% Corporate sponsorship The Pfizer-BMS Alliance provided a Corporate sponsorship to support Stroke Association Trading Ltd to deliver the 'UK Stroke Forum' in return for Gold Sponsorship inclusive of a stand space in the exhibition area. £13,500.00 - £14,500.00 £0.00
Charitable donation The Pfizer-BMS Alliance provided a grant to support Stoke Association's Northern Ireland Stroke Conference. £1,000.00 -
THE PITUITARY FOUNDATION (1058968)

The Pituitary Foundation is a national support, information and advocacy organisation for pituitary patients, their families, friends and carers. The foundation operates throughout the UK and the Republic of Ireland.

1.72% Charitable donation Charitable donation to The Pituitary Foundation with to deliver a focus group to support patient understanding of the holistic management of acromegaly. £7,500.00 - £7,500.00 £16.50
Related expenses Related travel expenses paid to The Pituitary Foundation to reimburse the staff member who attended the Pfizer organised 'PAG Summit Meeting' - £16.50
TURNER SYNDROME SUPPORT SOCIETY (1080507)

Turner Syndrome Support Society is a national charity caring for the needs of those with Turner Syndrome throughout the United Kingdom. The Society offers support and information to both girls and adult women with Turner Syndrome, their families and friends.

3.6% Consultancy and service fees Pfizer paid for consultancy services. Turner Syndrome Support Society were asked to review 'Missing an X' Disease Awareness Campaign developed by Pfizer. £4,000.00 - £4,000.00 £463.20
Related expenses Related travel expenses paid to Turner Syndrome Support Society to reimburse an employee whilst engaged on a paid consultancy service. - £463.20
Young Epilepsy NYCPE (311877)

Young Epilepsy is a UK charity dedicated to creating better lives for children and young people with epilepsy and related conditions. With over 120 years expertise, Young Epilepsy provide world class diagnosis, assessment and rehabilitation for children and young people with epilepsy. They also undertake research into the condition and how it can be treated.

0.02% Charitable donation Charitable donation to Young Epilepsy NYCPE to support advanced social media training for Pfizer Colleagues. This donation enabled provision of a real life setting for colleagues completing the training, enabling reflection on a ‘Patients First’ approach in an emotive setting. £3,856.00 - £3,856.00 £0.00
PP-PFE-GBR-1790 / June 2019